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NHS data sharing information

Your health records contain a type of data called confidential patient information, which can be used to help with research and planning. This is sometimes referred to as the General Practice Data for Planning and Research (GPDPR).

You can choose to stop your confidential patient information being used for research and planning. You can also make a choice for someone else like your children under the age of 13.

Shared data helps the NHS. It has been used to find the first treatment for coronavirus and for vaccine research.

NHS Digital will never sell your data, and there are strict rules about how NHS can use your data. It’s only shared securely and safely.

If you’re happy with your confidential patient information being used for research and planning you do not need to do anything.

How the NHS uses your patient data to improve health and care

YouTube video

Opting out of NHS Digital collecting your data (Type 1 Opt-out)

Please click on the links below to find out more and opt out if you wish to do so.

There is an online opt out form below or you can download a copy here to hand into your GP practice or you can complete the online form by using the NHS website here

Any choice you make will not impact your individual care.

Data sharing with NHS Digital will start on 1 September 2021 unless an opt out form has been submitted.

You can register a Type 1 Opt-out at any time. You can also change your mind at any time and withdraw a Type 1 Opt-out.

Data-sharing – Opt Out

Data-sharing – NHS Transparency Notice

Myth-busting

Online Type 1 opt out form